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The ALS Genetics and Clinic Event at the New York Genome Center

June 15, 2016

NYGC hosted an event for The ALS Association (ALSA) on Saturday, June 11, 2016. The forum, “ALS Genetics and the Clinic” was attended by members of renowned academic and medical institutions and ALSA clinics in the greater New York area and Connecticut. It featured presentations by leading ALS researchers on ALSA-funded genomics programs, and updates on the fundamental advances in our understanding of ALS through genetic research.

The presentations were followed by a panel discussion on how to involve clinics in the greater New York area and CT in the research and biobanking efforts described during the talks. Among the topics discussed were how NYGC and Columbia University Medical Center could coordinate to meet the infrastructure needs of the various ALSA clinics, e.g., by helping to draft Institutional Review Board protocols, providing standardized protocols for biospecimen collections, and providing common data elements for clinical phenotyping.

In the evening, a presentation was given to a general audience, followed by a cocktail reception and tour of NYGC’s facilities.

About the New York Genome Center
The New York Genome Center (NYGC) is an independent nonprofit at the forefront of transforming biomedical research and clinical care with the mission of saving lives. Comprised of renowned academic, medical and industry leaders across the globe, NYGC focuses on translating genomic research into clinical solutions for serious diseases. Our member organizations and partners are united in this unprecedented collaboration of technology, science and medicine. We harness the power of innovation and discoveries to improve people’s lives — ethically, equitably, and urgently. Member institutions include: Albert Einstein College of Medicine, American Museum of Natural History, Cold Spring Harbor Laboratory, Columbia University, Cornell University/Weill Cornell Medicine, Hospital for Special Surgery, The Jackson Laboratory, Memorial Sloan Kettering Cancer Center, Icahn School of Medicine at Mount Sinai, NewYork-Presbyterian Hospital, The New York Stem Cell Foundation, New York University, Northwell Health (formerly North Shore-LIJ), The Rockefeller University, Roswell Park Cancer Institute, Stony Brook University and IBM.

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